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MONITORING & MANAGEMENT

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SUPPORTIVE
THERAPIES

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What other ways can my type 1 Gaucher disease be managed?

Managing type 1 Gaucher disease can also include care to help with your symptoms, alongside any treatment you receive. This care will be specific to you and could include:

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Temporary rest or taking pain-relief medicine for severe bone pain

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Medicines called bisphosphonates that help slow down bone thinning

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Bone surgery or joint replacement

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Physiotherapy, occupational therapy, or massage therapy to help with pain

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Support from a psychologist to help with feelings and emotions

Monitoring Toolkit

Use this digital toolkit to easily track your symptoms and appointments. It also includes helpful discussion prompts to support meaningful conversations with your doctor.

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Monitoring Toolkit
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KNOW, TALK, LEARN

If you have type 1 Gaucher disease, know that it can worsen over time – even if you are well. Talk to your doctor about any concerns or questions you may have. Attend all of your check-ups for tests and scans.

RESOURCES

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FAQS

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